Care coordination that survives the messy reality of rare disease.Every new specialist gets the full story.Sage carries the story across every caregiver.From the 2 AM log to the 9 AM appointment.By parents who lived inside the chart.
The voice-first AI care coordinator for families with rare conditions.
Pulls your records directly from Epic, Apple Health, and other major providers.
The full story, carried into every appointment.
The snapshot trap vs the full movie: why isolated visit notes fail rare disease families
The Snapshot Trap
Disconnected Visits • Missing Context • Lost Time
The Full Movie
Best play session in weeks!
Temperature spike to 99.8°F. Slight lethargy observed after lunch.
PT Update: Walking gait is improving.
Holding hands. Stronger together.
That smile!
Gene Therapy Ph 2
Recruiting patients with KCNQ2 mutations.
You're all caught up
Continuous Timeline • Real-time Updates • Clinical Context
How CareGene works.
Capture
Voice-log moments between visits. Add a photo, a note, a vital. Sync the EHR. Everything lands in one place.
Connect
Sage organizes symptoms, medications, visits, and labs into one searchable timeline. The observations you log are ready to share with your team.
Prepare
Walk into the next appointment with a pre-visit summary your doctor can read in 30 seconds, with every line cited to a source you can show them.
Ask Sage
anything.
Every answer points back to the exact note or document it came from.
No black-box answers. Every claim is traceable to your child’s own records.
Log faster than paper
Speak or type symptoms, meds, and observations in seconds. Sage structures it for you.
Record any doctor visit
One tap captures the full appointment. Doctor voice, parent questions, everything.
Ask about clinical records
Get instant answers from your child’s complete history: dosages, dates, decisions, anything.
Own Every Appointment.
Sage instantly generates the documents you need to advocate for your child.
Neurology Follow-Up
From Today's Visit RecordingDr. Arisoy • June 14
Parent-Logged Changes (Since last visit)
Parent-generated summary from CareGene. Based on records logged by the parent for the child. Not a medical record. For discussion with your clinician. Generated June 14, 2026 at 9:42 AM.
Your child's data. Your rules.
Healthcare AI demands honesty, privacy, and control. Here's how we deliver it.
We built CareGene because our family needed it
CareGene was built because the founders needed it for their children. Your family's data is our family's data.
Not used to train AI
We do not use your child's records to train AI models. We do not share them with advertisers, and we do not sell them. Sage answers from your timeline only.
HIPAA-aligned infrastructure
End-to-end AES-256 encryption at rest and in transit, granular permission controls, and audit logs. CareGene is not a HIPAA-covered entity today; we build to the standard so we are ready when families bring us into their care team.
Built with rare-disease families.
Designed alongside the parents and care teams who need it most.
Families on Waitlist
HIPAA
Compliant Infrastructure
Built for daily use
Frequently Asked Questions
Everything you need to know about CareGene
What is CareGene and who is it for?
How do I get CareGene?
Is CareGene HIPAA compliant?
Is my child's data used to train AI models?
Does CareGene work with my child's existing care team?
Your family shouldn’t wait for a tool that helps today.
Built with rare-disease families. For rare-disease families. Be among the first to carry the whole story.